Yazisa, Ukuxhobisa, Qhagamshela

Ngathi

umsebenzi

I-Osteosarcoma Ngoku ijolise ekwaziseni, ukuxhobisa kunye nokudibanisa uluntu lwe-osteosarcoma kwihlabathi jikelele.

umbono

I-Osteosarcoma Ngoku yaphuhliswa ngenjongo yokuxhasa abaguli be-osteosarcoma kunye neentsapho zabo kulo lonke uhambo lwabo lomhlaza, naphi na apho bahlala khona emhlabeni. Ngokubonelela ngemiqondiso ecacileyo, ujongano olusebenziseka lula kunye nokwabelana ngenzululwazi ngendlela efikelelekayo sinethemba lokuba singenza ixesha elinzima libe lula kancinci. yethu ugcino lwedatha yovavanyo lweklinikhi yenzelwe ukuba izigulane zibe nezixhobo kunye nolwazi lokuphonononga iindlela ezintsha zonyango kunye nokwenza izigqibo ezifanelekileyo kubo.

Sikholelwa kakhulu ukuba intsebenziswano kufuneka ibe phambili kuyo yonke into esiyenzayo. Sifuna ukudibanisa izigulana, abaphandi, oogqirha kunye nemibutho yesisa ye-sarcoma kwihlabathi jikelele ukwabelana ngemibono, uphando lwangaphambili kunye nokuphucula iziphumo zabo bafunyaniswa ne-osteosarcoma.

Uthethelelo kunye nolwazi

Ukufunyaniswa ukuba une-osteosarcoma kunokuba nzima kwaye siyazi ukuba ukuthetha noogqirha kunokuziva ngathi kufuneka ufunde ulwimi olutsha. Izixhobo zethu zilapha ukukunceda uhambe kwihlabathi lezonyango ngokuzithemba kwaye uhlale usexesheni ngophando lwenzululwazi kunye namathuba ovavanyo lwezonyango.

Research

I-Osteosarcoma Ngoku ilawulwa yi Myrovlytis Trust i-Medical Research Charity ezinikele kwizifo ezinqabileyo. Kwi-Myrovlytis Trust, sixhasa ngemali uphando lokuzisa ngokukhawuleza i-novel kunye nonyango olusebenzayo oluvela kwibhubhoratri ukuya ekliniki ukuphucula iziphumo zabo baphila ne-osteosarcoma kunye nezinye iimeko ezinqabileyo. 

Ukuba ungumphandi ogxile kuphando loguqulo kwi-osteosarcoma, sinomdla wokuva kuwe. Sithumele i-imeyile contact@myrovlytistrust.org

IBhodi yeeNgcebiso zezigulane

Ilizwi lesigulane lisembindini womsebenzi wethu. Ibhodi yethu yabacebisi yezigulane idibana kanye ngonyaka ukuxoxa ngeenjongo zethu kwaye incede ukuchonga ukuba nguwuphi umsebenzi ekufuneka ubekwe phambili. Onke amalungu ebhodi akwanalo ithuba lokuphonononga izicelo zethu zophando ukuqinisekisa ukuba uphando esiluxhasa ngemali lufanelekile kwaye lunefuthe. 

USally uyancuma. Uneenwele ezimdaka kwaye unxibe intsimbi yomqala

Sally, eU.SA

Ndijoyine ibhodi yengcebiso yesigulana ukuba ndithathe amava am kunye nonyana wam owayene-osteosarcoma kwaye ndincede abanye abahamba ngale nto. Kuyandivuyisa ukubona inkqubela eyenzekayo kwesi sifo. Ndinomdla wokuzama ukutshintsha ibali le-osteosarcoma, kwaye ndiwongwe ngokusebenza kwesi sikhundla.

URuth uyancuma. Uneenwele ezimdaka kunye namehlo aluhlaza.

URuth, e-UK

Unyana wam, uFergus, wasweleka yi-Osteosarcoma ngoMeyi ka-2022, kwiintsuku ezili-10 ngaphambi kokuzalwa kwakhe kwe-13th. Andingomntu wokuqala ukuthetha ukuba unyango lwangoku, lwamashumi amane eminyaka lubuthuntu, lukhohlakele kwaye lusoloko lungasebenzi. Kukho imfuneko yokuqonda ngcono isifo ngokwaso kunye nokhetho olukhuselekileyo, olujoliswe kunyango. Ndizisa ulwazi lwam malunga nokuba zinjani na izinto kwabo banyangwa i-Osteosarcoma, ngamaxesha onke ndikhuthazwa ngumnqweno wokunceda iintsapho ziphephe intlekele thina, kunye nabanye abaninzi, kuye kwafuneka sijamelane nayo.

UAlejandra uyancuma. Uneenwele ezimdaka kwaye unxibe umntla omhlophe.

UAlejandra, eNorway

Unyana wam uBernardo wasweleka ngoJulayi ka-2021 esuka e-Osteosarcoma, kanye xa wayesele eza kuba neminyaka eli-17 ubudala. Saba nethamsanqa lokuba nabahlobo kunye nosapho kwiinkalo zenzululwazi kunye nezonyango eziye zasinceda ukuba siqonde oko uBernardo wayekuko nokulungiselela iintlanganiso zethu noogqirha. Sasinombulelo ongazenzisiyo ngoncedo lwabo oluxabiseke kunene, njengoko ngesiphulukene ngaphandle kwalo. I-Osteosarcoma Ngoku sisixhobo esihle kakhulu esibonelela ngolwazi oluchanekileyo noluthembekileyo kuye nabani na, naphi na emhlabeni. Ndiwongekile ukuba yinxalenye yebhodi yengcebiso yezigulane, njengoko ndiqonda ukubaluleka kolwazi kwiintsapho, oogqirha, kunye nabaphandi.

UCharlene uyancuma. Unamacici ehupula kwaye unxibe isitsibi esimnyama.

Charlene, UK

Kwafunyaniswa ukuba ndine-Osteosarcoma xa ndandineminyaka engama-27 ubudala, apho ndafumana utyando lokulondoloza amalungu omzimba ukuze nditshintshwe ngokupheleleyo. Oku kwalandelwa yicocktail enzima yamayeza, kunye nokubuyisela kwisimo sangaphambili okunzulu kakhulu. Kwindlela yam yokuchacha ngokwasemzimbeni, bendijongene ngokungafanelekanga nokungalingani okuninzi kunye nokungahambelani okujikeleze ukhathalelo lwam, ukungabikho kwenkxaso yempilo yengqondo, kunye neentsilelo ezongezelelekileyo. Ngoku njengembasa yegqwetha elityunjiweyo, ndisebenzisa amava am aphilayo kunye nothando ngokungalingani kwam kwezempilo ukwazisa, ukuxhasa kunye nokukhankasela utshintsho kukhathalelo lomhlaza. Ndiziva ndiwongekile ukuba kwibhodi yeengcebiso zesigulana ukuqhubeka nomsebenzi wokwazisa ngakumbi kunye nenkqubela phambili yophando kunyango olungcono kunye neziphumo kwizigulana ze-osteosarcoma.

"Kula nxibelelwano phakathi kwesigulana neqela kunye nam kunye nentsebenziswano phakathi kokunyamekela umntwana ofikisayo nabazali bakhe kunye nosapho lonke ndiye ndalufumana lunomvuzo ngokwenene."

UGqr Sandra StraussUCL

Joyina incwadana yethu yeendaba yekota ukuze uhlale unolwazi ngophando lwamva nje, iminyhadala kunye nezibonelelo.