Nezvedu
basa
Osteosarcoma Iye zvino ine chinangwa chekuzivisa, kupa simba uye kubatanidza nharaunda yeosteosarcoma pasi rese.
kuona
Osteosarcoma Zvino yakagadziriswa nechinangwa chega chekutsigira varwere veosteosarcoma nemhuri dzavo mukati merwendo rwavo rwegomarara, chero kwavanogara munyika. Kuburikidza nekupa masaini akajeka, nzvimbo dzinoshandiswa nevashandisi uye kugovera sainzi nenzira inosvikika tinovimba kuti tinogona kuita kuti nguva yakaoma ive nyore zvishoma. Our curated clinical trial database yakagadzirwa kuitira kuti varwere vave nemidziyo uye ruzivo rwekuongorora nzira itsva dzekurapa uye kuita sarudzo dzakavakodzera.
Tinotenda zvakasimba kuti kubatana kunofanira kunge kuri pamberi pane zvese zvatinoita. Tinoda kubatanidza varwere, vaongorori, varapi uye vanopa rubatsiro pasi rese kuti vagovane mazano, kufambisira mberi tsvakiridzo uye pamwe chete kuvandudza mhedzisiro yeavo vakawanikwa vaine osteosarcoma.
Advocacy uye ruzivo
Kuonekwa kuti une osteosarcoma kunogona kunetsa uye tinoziva kuti kutaura navanachiremba kunogona kunzwa kuda kudzidza mutauro mutsva. Zviwanikwa zvedu zviri pano kuti zvikubatsire kufamba munyika yezvokurapa uine chivimbo uye nekukuchengeta uchiziva nezvetsvakiridzo yesainzi uye mikana yekuyedzwa kwekiriniki.
tsvakurudzo
Osteosarcoma Iye zvino inotungamirirwa ne Myrovlytis Trust a Medical Research Charity yakatsaurirwa kuzvirwere zvisingawanzo. KuMyrovlytis Trust, tinopa mari yekutsvagisa kuti ikurumidze kuunza kurapa kutsva uye kunoshanda kubva murabhoritari kuenda kukiriniki kuvandudza zvinobuda kune avo vanorarama neosteosarcoma nemamwe mamiriro asingawanzo.
Kana iwe uri muongorori akatarisana neshanduro yekutsvaga muosteosarcoma, tinoda kunzwa kubva kwauri. Titumire email pa contact@myrovlytistrust.org
Patient Advisory Board
Izwi remurwere riri pakati pebasa redu. Bhodhi redu revanopa zano revarwere rinosangana kamwe chete pagore kuti tikurukure zvinangwa zvedu uye kubatsira kuona kuti ibasa ripi rinofanira kukosheswa. Vese nhengo dzebhodhi vanewo mukana wekuongorora zvikumbiro zvedu zvekutsvagisa kuti tive nechokwadi chekuti tsvakiridzo yatinopa mari inoenderana uye ine pundutso.
Sally, USA
Ndakajoinha bhodhi rezano remurwere kuti nditore zviitiko zvangu nemwanakomana wangu aive neosteosarcoma uye kubatsira vamwe vari kupfuura neizvi. Ndiri kufara kuona budiriro ichiitika nechirwere ichi. Ndine shungu yekuyedza kushandura rondedzero yeosteosarcoma, uye kukudzwa kushanda munzvimbo iyi.
Ruth, UK
Mwanakomana wangu, Fergus, akafa neOsteosarcoma muna Chivabvu 2022, mazuva gumi pamberi pekuzvarwa kwake gumi nematatu. Ini handisi wekutanga kutaura kuti kurapwa kwazvino, makumi mana emakore ekare hakuna kujeka, hutsinye uye kazhinji haashande. Pane kudiwa kwekunzwisisa zviri nani nezvechirwere chacho uyezve sarudzo dzekuchengetedza, kurapwa kwakanangwa. Ini ndinounza ruzivo rwangu rwekuti zvinhu zvakaita sei kune avo vari kurapwa Osteosarcoma, nguva dzese ndichikurudzirwa nechishuwo chekubatsira mhuri kudzivirira njodzi iyo isu, nevamwe vazhinji, takatarisana nayo.
Alejandra, Norway
Mwanakomana wangu Bernardo akashaya muna Chikunguru 2021 kubva kuOsteosarcoma, paakanga ava kuda kusvitsa makore 17. Paakaongororwa kekutanga, takakurirwa uye taisaziva zvakawanda nezvechirwere ichi. Takaita rombo rakanaka kuva neshamwari nemhuri mune zvesainzi uye zvekurapa vakatibatsira kunzwisisa zvaiitika naBernardo uye kugadzirira misangano yedu nevarapi. Takaonga chaizvo rubatsiro rwavo runokosha, sezvo tingadai takarasika pasina. Osteosarcoma Iye zvino chisimbiso chakanakisa chinopa ruzivo rwakakwana uye rwakavimbika kune chero munhu, chero kupi zvako pasirese. Ndine rukudzo kuve chikamu chebhodhi revanopa zano, sezvo ini ndinonzwisisa kukosha kweruzivo kumhuri, vanachiremba, uye vaongorori.
Charlene, UK
Ndakabatwa chirwere cheOsteosarcoma ndiine makore makumi maviri nemanomwe, kwandakaitwa kuvhiyiwa nhengo dzemuviri dzichichinjwa ibvi rakazara. Izvi zvakateverwa nehomwe huru yemishonga, uye kudzoreredza kwakanyanya. Panzira yangu yekupora mumuviri, ndakatarisana nezvisakarurama nekusaenzana kwakawanda uye kusaenderana kwakatenderedza kutarisirwa kwangu, kushaikwa kwerutsigiro rwehutano hwepfungwa, uye kumwe kukanganisa. Iye zvino semurevereri wemurwere akasarudzwa, ndinoshandisa ruzivo rwangu rwehupenyu uye chido kuburikidza nekusaenzana kwehutano hwangu kuzivisa, kutsigira uye mushandirapamwe wekuchinja mukutarisira kenza. Ndinonzwa kuremekedzwa kuve pabhodhi revanopa zano revarwere kuti ndienderere mberi nebasa rekusimudzira ruzivo uye kufambira mberi kwetsvakiridzo yekurapa kurinani uye zvinobuda kune varwere veosteosarcoma.
"Kubatana ikoko pakati pemurwere nechikwata neni uyezve kudyidzana kuri pakati pekuchengeta wechidiki nevabereki vavo nemhuri yese ndakaona kune mubairo chaiwo."
Dr Sandra Strauss, UCL
Joinha tsamba yedu yekota kuti ugare uchifambirana nenguva netsvagiridzo yazvino, zviitiko uye zviwanikwa.