Inform, Empower, Connect

This year we were invited to take part in the rare disease podcast “Wait, How Do You Spell That?” run by Patient Worthy. Patient Worthy is an online platform that shares news stories that are important to the rare disease community and connects them with educational resources.

In the podcast, CEO Anna Webb and Charity Officer Katie Nightingale discuss the vision and aims of the Myrovlytis Trust (the charity that runs Osteosarcoma Now). They also discuss our new curated clinical trial database and its importance for patients.

Listen to “Forging a Path in Rare Disease Research” to find out more about the database and our aims.

We hope you enjoy the podcast and would like to thank Colby and the team at Patient Worthy for the invitation to talk on their podcast.