Hoʻomaopopo, Empower, Connect

ʻO ka hōʻuluʻulu ʻana i nā hoʻokolohua lapaʻau

                   Hoʻokele osteosarcoma

Kaʻana like i ka noiʻi hou loa 

Hoailona no ke kākoʻo

                                Hōʻike i nā hanana

ʻO ka hōʻuluʻulu ʻana i nā hoʻokolohua lapaʻau

           Hoʻokele osteosarcoma

Kaʻana like i ka noiʻi hou loa 

Hoailona no ke kākoʻo 

                         Hōʻike i nā hanana 

Hana nā kānaka ʻepekema i nā hoʻokolohua i loko o ka hale hana

Huli i ka Osteosarcoma Now Clinical Trial Explorer 

Manaʻo nui mākou e loaʻa iā ʻoe nā ʻike e pili ana i nā hoʻokolohua lapaʻau ma nā wahi āu e noho ai ma ka honua. ʻO kā mākou ʻikepili hoʻāʻo lapaʻau curated (ONTEX) hōʻuluʻulu i nā hoʻokolohua mai ka honua holoʻokoʻa i mea e maʻalahi ai kāu ʻimi. Loaʻa i ka ʻike nui e pili ana i ka hoʻokolokolo, ka mālama ʻana a me ka ʻike pili.

Loaʻa iā mākou nā kumuwaiwai e kōkua iā ʻoe e hoʻomaopopo maikaʻi i nā hoʻokolohua lapaʻau. 


Blog


Nā ho'āʻo hoʻokolohua


Mea hana ma'i

Events

Maanei hiki iā ʻoe ke ʻike e pili ana i nā hanana osteosarcoma ma ka honua holoʻokoʻa me nā hālāwai kūkā, nā lā ʻike, nā podcasts a me nā mea hou aku.

Nā hui kākoʻo

Nui nā hui maikaʻi i hoʻolaʻa ʻia no ke kākoʻo ʻana i ke kaiāulu osteosarcoma. E ʻimi i kā mākou palapala ʻāina pili no ka ʻike e pili ana i nā hui kokoke iā ʻoe.

E ʻike e pili ana i ka noiʻi a mākou e hāʻawi kālā ai i ka osteosarcoma

E hui pū me kā mākou Papa Kūkākūkā maʻi

Applications are now open to join our patient advisory board. We are looking for 6 members of the osteosarcoma community to join our board and help direct our charity’s work.

Hiki paha i nā mea hoʻokipa P2 ke lilo i pahuhopu no ka maʻi maʻi maʻi iwi mua?

iwi kumu Ka maʻi 'aʻai (PBC) he pūʻulu o nā maʻi maʻi e loaʻa ana i ka osteosarcoma (OS). ʻO nā maʻi maʻi maʻi ʻē aʻe o kēia hui ʻo Ewing's sarcoma, chondrosarcoma a me chordoma. He liʻiliʻi nā holomua i ka mālama ʻana i ka PBC no nā makahiki he 40 i hala. ʻO kēia ka manaʻo aia kahi wikiwiki ...

Huli i nā Mechanisms Ola Ola

Ua ʻimi kahi noiʻi hou i kahi lapaʻau kūpono i kapa ʻia ʻo APR-246 i nā maʻi maʻi maʻi paʻakikī i loaʻa nā hoʻololi genetic kikoʻī.

Osteosarcoma Research ma Sarcoma UK

I kēia pule, ua lawe ʻo Kate Quillin, Luna ʻImi ma Sarcoma UK, i kā mākou blog. Hāʻawi ʻo Sarcoma UK i ka noiʻi koʻikoʻi, hāʻawi i ke kākoʻo a me ka hoʻolaha ʻana no nā lāʻau lapaʻau maikaʻi aʻe.

E kau inoa no ka Osteosarcoma Now Newsletter

Hauʻoli mākou i ka hoʻolaha ʻana e loaʻa ka Osteosarcoma Now Newsletter (ONN) i kāu pahu pahu ma ka Pōʻalima 30 o Kepakemapa. E kākau inoa i kēia manawa!

Hoʻomaopopo i ka Laha ʻana o Osteosarcoma

ʻO ka hoʻomaopopo ʻana i ka laha ʻana o ka osteosarcoma hiki ke kōkua i nā hoʻolālā lapaʻau e hiki mai ana. I ka makahiki i hala, ua paʻi ʻia kahi pepa e hōʻike ana i kahi kuleana no a kumuʻiʻo i kapa ʻia ʻo P2RX7B i ka hoʻoulu ʻana a me ka hoʻolaha ʻana o ka osteosarcoma.

ICONIC: He hoʻāʻo ʻo Osteosarcoma

ʻO Dr Strauss kekahi o nā mea noiʻi nui o UK ma osteosarcoma a ke alakaʻi nei i ka hoʻokolokolo ICONIC. Ua hauʻoli mākou e nīnauele iā ia e pili ana i ke koʻikoʻi o ke aʻo ʻana, pehea e komo ai a me nā hopena i kēia manawa.

Nā mea nui mai ka MIB Agents FACTOR Conference

Ua hele mākou i ka hui MIB Agents FACTOR. Ua hui pū ka hui osteosarcoma no kahi kumu hoʻoikaika - e hoʻomaikaʻi i nā mea.

ʻO nā mea e hiki iā mākou ke aʻo mai nā ho'āʻo hoʻokolohua Osteosarcoma hou

Ua paʻi ʻia nā hoʻokolohua ʻelua e nānā ana i nā lāʻau lapaʻau hou i ka osteosarcoma. ʻOiai ʻaʻole maikaʻi nā lāʻau lapaʻau he nui nā mea e hiki ke aʻo mai iā lākou.

Ke hoʻohana nei i nā maʻi maʻi maʻi maʻi maʻi e mālama i ka maʻi maʻi iwi

ʻO nā maʻi 'cancer busting' oncolytic he ʻano o ka immunotherapy. Hiki iā lākou ke pepehi pololei i nā maʻi maʻi maʻi a ma ka hoʻoulu ʻana i ke kino immune nenoaiu e kaua i ka maʻi maʻi.  

"Noʻu ka hiki ke hoʻomohala i kahi lāʻau e kōkua ai i ka poʻe me ka osteosarcoma he mea hoʻomaikaʻi maoli ia i ka hoaaloha o kaʻu kaikamahine."

Polofesa Nancy DeMore, Ke Kulanui Lapaʻau o South Carolina

Ma hope o ka mālama ʻana no #Osteosarcoma ua lilo ʻo Charlene i #CancerCoach no mākou & i kēia manawa ke holo nei i nā hui no ka poʻe i hoʻopau i ka mālama ʻana #Cancer. ʻImi ʻo Charlene i nā ʻenehana e kōkua iā lākou i ko lākou ola hou ʻana. E hoʻolohe i kāna hana hanu maʻalahi akā maikaʻi https://bit.ly/3dPKXZL

Hana pēnēia, More ...

E hui pū me kā mākou nūpepa i kēlā me kēia hapaha makahiki e hoʻomau i ka manawa me ka noiʻi hou loa, nā hanana a me nā kumuwaiwai.

Pākahi

Osteosarcoma Institute
Sarcoma Patient Advocate Global Network
Hoʻokumu ʻo Bardo
Sarcoma Uk: ʻO ke aloha iwi a me ka ʻiʻo palupalu

Kākoʻo ʻo Bone Sarcoma Peer