Join our Patient Advisory Board

by Jazzmin Huber | Sep 27, 2022 | Research, Resources and Support

Applications are now open to join our patient advisory board. We are looking for 6 members of the osteosarcoma community to join our board and help direct our charity’s work. We want to hear your thoughts and ideas to ensure the work we do and the research we...

Sign Up for the Osteosarcoma Now Newsletter

by Jazzmin Huber | Aug 30, 2022 | Resources and Support

We are excited to announce that the first Osteosarcoma Now Newsletter (ONN) will be in your inbox on Friday 30th September. ONN will be published every 3 months and it aims to keep you informed about the latest osteosarcoma news. Each issue will discuss the current...

Highlights from the MIB Agents FACTOR Conference

by Jazzmin Huber | Aug 9, 2022 | Research, Resources and Support

We were delighted to attend the MIB Agents FACTOR conference in San Diego in June. The osteosarcoma (OS) community joined forces for an inspirational cause – to make things better for those with OS. Support for families MIB agents have several programmes for patients...

Osteosarcoma Now on Rare Disease Podcast

by Jazzmin Huber | Jul 12, 2022 | Resources and Support

This year we were invited to take part in the rare disease podcast “Wait, How Do You Spell That?” run by Patient Worthy. Patient Worthy is an online platform that shares news stories that are important to the rare disease community and connects them with educational...

Your Osteosarcoma Healthcare Team  

by Jazzmin Huber | Jun 21, 2022 | Resources and Support

When you are diagnosed with osteosarcoma (OS), you will often see many different types of doctors in a very short period of time. We understand this may be confusing especially when you’ve just been diagnosed with OS and don’t know where to start. In this blog we...

Curated Osteosarcoma Clinical Trial Database

by Jazzmin Huber | Jun 13, 2022 | Clinical Trials, Research, Resources and Support

We are delighted to launch our curated osteosarcoma clinical trial database. We believe that wherever you live in the world information about clinical trials should be available to you and this database has been built to support your search. Each trial has been...