About Osteosarcoma Now

Osteosarcoma Now is a global platform dedicated to improving access to information, clinical trials, and support for people affected by osteosarcoma.

Osteosarcoma is a rare type of bone cancer that most commonly affects children, teenagers, and young adults . Despite advances in treatment, outcomes have changed little in recent decades, and patients often face significant challenges in finding relevant trials and understanding their options.

We exist to help change that.

Our Mission

Our mission is simple: to inform, empower, and connect the osteosarcoma community worldwide.

We do this by:

• Making clinical trials easier to understand and access
• Providing clear, patient-friendly information
• Supporting patients, families, and caregivers throughout their journey

What We Do

Simplifying Clinical Trials

We translate complex clinical trial data into clear, accessible information so patients and families can better understand potential treatment options.

Improving Access to Information

We bring together global research, treatment insights, and educational resources in one place, helping reduce the barriers to understanding osteosarcoma.

Connecting the Community

We signpost to support groups, organisations, and resources to ensure no one faces osteosarcoma alone.

Why This Matters

Osteosarcoma is rare, and that rarity creates challenges:

• Limited awareness
• Fewer treatment options
• Difficulty accessing trials

Patients and families are often left navigating a complex and fragmented system.

Osteosarcoma Now helps bridge that gap by providing a central, trusted resource.

Our Approach

We work to ensure that everything we share is:

• Accurate – grounded in trusted sources such as clinical trial registries
• Accessible – written in clear, patient-friendly language
• Relevant – focused on real patient needs

Our platform is designed to support informed conversations between patients and their healthcare teams—not replace them.

Looking Ahead

We are committed to continuing to:

• Expand access to global clinical trials
• Improve patient understanding of treatment options
• Support the osteosarcoma community through better information and connection

Supported By The Bardo Foundation

Osteosarcoma Now is supported by The Bardo Foundation, a non-profit organisation dedicated to accelerating osteosarcoma research, improving access to care, and supporting families affected by childhood cancer.