Inform, Empower, Connect

Summarising clinical trials

                   Navigating osteosarcoma

Sharing the latest research 

Signposting to support

                                Highlighting events

Summarising clinical trials

           Navigating osteosarcoma

Sharing the latest research 

Signposting to support 

                         Highlighting events 

Scientists doing experiments in the labratory

We strongly believe that wherever you live in the world information about clinical trials should be available to you. Our curated clinical trial database (ONTEX) summarises trials from across the globe to make your search easier.

We also have resources to help you better understand clinical trials.


Clinical Trials

Patient Toolkit


Being diagnosed with osteosarcoma can feel like having to learn a whole new language.  Here you can find definitions for words your doctor is likely to use.

Support Groups

There are so many wonderful organisations dedicated to supporting the osteosarcoma community. Search our interactive map for information about organisations near you.

Find out about the research we fund into osteosarcoma

The REGBONE Clinical Trial – Interview with Professor Anna Raciborska

A clinical trial has opened in Poland that will test whether regorafenib can be used to treat bone cancers. We interviewed trial lead Professor Raciborsk.

A Close Look at the Immune Cells in Osteosarcoma

A recent study looked at immune cells in osteosarcoma . The aim was to provide insight into the immune landscape and potentially shed some light on how it could be targeted by drugs.

A Drug Repurposing Clinical Trial

Dr. Matteo Trucco has launched a sarcoma clinical trial. It aims to see if disulfiram could be repurposed to be used in sarcoma treatment.  

Harnessing the Immune System against Osteosarcoma

In the last 30 years there has been very little change to osteosarcoma (OS) treatment. We are dedicated to changing this. Through the Myrovlytis Trust, we fund research into OS, with a focus on finding new treatments. We are pleased to announce we have awarded funding...

ONTEX Toolkit – Spread the Word

Welcome to the ONTEX social media toolkit. We are delighted to have launched our new improved Osteosarcoma Now Trial EXplorer (ONTEX). Each osteosarcoma clinical trial has been summarised to give a clear picture of its aims, what it involves and who can take part. Its...

Introducing the Osteosarcoma Now Trial EXplorer (ONTEX)

We are delighted to launch our new improved Osteosarcoma Now Trial EXplorer (ONTEX). ONTEX is an international database that aims to make clinical trial information available and accessible to all. Each osteosarcoma clinical trial has been summarised to give a clear...

Osteosarcoma Now – Highlights of 2022

Our work in osteosarcoma started in 2021, with many months dedicated to talking with experts, patients and other charities. In this blog we reflect on what we achieved in 2022.

Office Christmas Hours

Hello Everyone. We are closed from Friday 23rd December until Tuesday 3rd January. During that time all the content on the website will be available but we will be taking a break from the weekly blogs. On our return, we will respond to any emails. From all of us at...

Winter Osteosarcoma Now Newsletter

Sign up for the Osteosarcoma Now Newsletter. Each issue will discuss the current research and signpost to events across the world.

CTOS Annual Meeting – The Highlights

We attended the 2022 CTOS annual meeting. The meeting brought together clinicians, researchers and patient advocates dedicated to improving outcomes in sarcoma.

It’s that connection between the patient and the team and myself and also the interplay between looking after a teenager and their parents and the rest of the family I found really rewarding

Dr Sandra StraussUCL

The survey is available in 11 languages, each of which can be accessed from the survey landing page here:

🇮🇳 Hindi
#sarcoma #CancerResearch #PatientVoices

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Osteosarcoma Institute
Sarcoma Patient Advocate Global Network
Bardo Foundation
Sarcoma Uk: The bone and soft tissue charity

Bone Sarcoma Peer Support