Inform, Empower, Connect

Summarising clinical trials

                   Navigating osteosarcoma

Sharing the latest research 

Signposting to support

                                Highlighting events

Summarising clinical trials

           Navigating osteosarcoma

Sharing the latest research 

Signposting to support 

                         Highlighting events 

Scientists doing experiments in the labratory

We strongly believe that wherever you live in the world information about clinical trials should be available to you. Our curated clinical trial database (ONTEX) summarises trials from across the globe to make your search easier.

We also have resources to help you better understand clinical trials.


Blog


Clinical Trials


Patient Toolkit

Glossary

Being diagnosed with osteosarcoma can feel like having to learn a whole new language.  Here you can find definitions for words your doctor is likely to use.

Support Groups

There are so many wonderful organisations dedicated to supporting the osteosarcoma community. Search our interactive map for information about organisations near you.

Find out about the research we fund into osteosarcoma

Can treatment for osteosarcoma be effective for other bone cancers?

Rare primary malignant bone sarcoma (RPMBS) is a term for rare bone cancers, and they account for no more than a tenth of fast-growing bone tumours. It can be difficult to research RPMBS as they are so rare. This slows down the development of new treatments. RPMBS...

Finding drugs to treat metastatic bone cancer

We were delighted to award Dr Tanya Heim a travel grant to present her work at FACTOR. Find out more about her work and FACTOR in her guest blog post. I have been a biomedical research scientist for over a decade. I have not always studied cancer, but I have always...

Making it Better for Young People with Osteosarcoma Together

Making it better for young people with Osteosarcoma is the mission of MIB Agents. Every year they bring together patients, families, doctors and researchers to drive forward research into bone cancer. This June the conference, called FACTOR, took place in Atlanta and...

Hunting for Protein Changes in Bone Cancer

We were delighted to award Dr Wolfgang Paster a travel grant to present his work at the 20th Annual Meeting of Cancer Immunotherapy earlier this year. Find out more about his work in his guest blog post.

Osteosarcoma Clinical Trial Update

Every year cancer experts from across the world come together for The American Society of Clinical Oncology Annual Meeting (ASCO). The aim of ASCO is to share knowledge and provide updates on cancer research. By working together we hope to develop new cancer...

The British Sarcoma Group Conference Highlights 2023

The British Sarcoma Group (BSG) annual conference took place on March 22nd – 23rd 2023 in Newport, Wales. We were delighted to attend as an exhibitor to promote our Osteosarcoma Now Trial Explorer (ONTEX) and our 2023 grant funding round. It was also inspiring to hear...

A Promising New Bone Cancer Drug

Researchers have developed a new drug that works against bone cancer. The drug, called CADD522, has shown promising results in the laboratory.

A New Clinical Trial Testing a Drug that can Disassemble Itself – Interview with Dr Emily Slotkin

A clinical trial in the USA is recruiting patients with osteosarcoma and other cancers to test a new drug complex called GD2 SADA: 177 Lu DOTA. This drug uses a new technology where it can disassemble and reassemble itself. By changing the way it’s constructed it can...

The REGBONE Clinical Trial – Interview with Professor Anna Raciborska

A clinical trial has opened in Poland that will test whether regorafenib can be used to treat bone cancers. We interviewed trial lead Professor Raciborsk.

A Close Look at the Immune Cells in Osteosarcoma

A recent study looked at immune cells in osteosarcoma . The aim was to provide insight into the immune landscape and potentially shed some light on how it could be targeted by drugs.

It’s that connection between the patient and the team and myself and also the interplay between looking after a teenager and their parents and the rest of the family I found really rewarding

Dr Sandra StraussUCL

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Partnerships

Osteosarcoma Institute
Sarcoma Patient Advocate Global Network
Bardo Foundation
Sarcoma Uk: The bone and soft tissue charity

Bone Sarcoma Peer Support

Trust Paola Gonzato